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2022 National Lifespan Respite Conference



Alison Barkoff

Acting Administrator and Assistant Secretary for Aging

Principal Deputy Administrator

Administration for Community Living

U.S. Department of Health and Human Services

Washington, D.C.

(presenting via virtual livestream)

Keynote Address

ACL’s Policies and Programs to Support the Nation’s Family Caregivers

Acting ACL Administrator and Assistant Secretary for Aging Alison Barkoff will share the Administration for Community Living’s perspective on policies and programs that support community living for people with disabilities, older adults and both family and professional caregivers. Among other priorities, her remarks will discuss the current status of the historic national strategy for family caregivers from the RAISE Family Caregiving Advisory Council and the Advisory Council to Support Grandparents Raising Grandchildren.

About Alison Barkoff

Alison Barkoff was sworn in as Principal Deputy Administrator on January 20, 2021, and is currently serving as ACL’s Acting Administrator and as the Acting Assistant Secretary for Aging. She provides executive leadership and coordination for ACL programs nationwide and advises the HHS Secretary on issues affecting people with disabilities and older adults.

A sibling of an adult brother with developmental disabilities and a civil rights attorney, Alison is a lifelong advocate for community living – both professionally and personally – and has been at the forefront of national efforts to expand the home and community-based services (HCBS) that make community living possible.

Under her leadership, ACL is working with partners across HHS and the federal government on initiatives and interagency approaches to issues that affect people with disabilities and older adults, such as expanding access to HCBS and affordable, accessible housing; strengthening the direct care workforce; increasing competitive, integrated employment for people with disabilities; and advancing equity, to name just a few.

Jennifer Olsen, DrPH, MPH

Chief Executive Officer

Rosalynn Carter Institute for Caregivers

Americus, GA

Keynote Address

Working While Caring

Dr. Jennifer Olsen, chief executive officer at the Rosalynn Carter Institute for Caregivers, will present research findings from their recent white paper Invisible Overtime: What employers need to know about caregivers. RCI is working to provide specific solutions for employers to support family caregivers. Dr. Olsen will describe and provide an update on a recently launched new RCI employer initiative, Working While Caring, which will seek to partner with employers to pilot new and innovative solutions to keep caregiver employees attached to the labor market for the long term.

About Dr. Olsen

Dr. Jennifer Olsen, an experienced epidemiologist, serves as Chief Executive Officer of the Rosalynn Carter Institute for Caregivers (RCI), which promotes the health, strength, and resilience of caregivers throughout the United States. Prior to joining RCI, Olsen managed the Ending Pandemics in Our Lifetime initiative at the Skoll Global Threats Fund, and prior to that she served as Fusion Division Director in the Office of the Assistant Secretary for Preparedness & Response at the U.S. Department of Health and Human Services, where she developed and implemented an analytics platform to increase awareness and information sharing during public health emergencies. She also previously held roles with the Defense Threat Reduction Agency, where she conducted scenario modeling. Olsen holds a B.A. in biomathematics from Rutgers University, an M.P.H. in Epidemiology from The George Washington University, and a Dr.P.H. from the University of North Carolina. She lives in Plains, Georgia – a town of 700 people, and has become familiar with rural health challenges and opportunities.

Charlotte Deleste

Evening News Anchor, Madison WISC-TV

Founder and Vice-President

Gio's Garden Therapeutic Respite Center

Madison, WI


Unprecedented numbers of family caregivers were forced to leave the labor force during the pandemic as they struggled to manage new or intensified caregiving duties, work, family responsibilities, and the resulting stress. A significant majority of family caregivers, at least 60 percent, are still in the labor force. Both scenarios demand a more responsive and supportive workplace moving forward. Not only are the health and financial well-being of these caregivers at-risk, businesses may be losing billions of dollars annually from lost productivity, replacement costs for employees who quit because of overwhelming caregiving responsibilities, absenteeism, and workday interruptions.

This panel will explore strategies to support working caregivers, including statewide public/private partnerships, outreach to identify and serve working caregivers, best practices to educate and engage employers in respite care, caregiver support and workplace flexibilities. We will also hear from an employer about their response to supporting their employed family caregivers, and from an employed caregiver about her personal experience.

Panel will be facilitated by Dr. Jennifer Olsen, Rosalynn Carter Institute for Family Caregivers

Greg Olsen

Acting Director

New York State

Office for the Aging

Albany, NY

Kim Falk

Respite Employer

Engagement Coordinator

Munroe-Meyer Institute

University of Nebraska

Medical Center

Omaha, NE

Diana Clark

Benefits Manager

Human Resources

Promega Corporation

Madison, WI

Lynn Gall

Family Caregiver Support Programs Manager

Bureau of Aging and Disability Resources

Office on Aging

Wisconsin Department of Health Services

Co-chair, Wisconsin Family and Caregiver

Support Alliance, Employer Engagement


About us

We are a national, membership-based organization that assists and promotes the development of quality respite and crisis care programs; helps families locate respite and crisis care services in their communities; and serves as a strong voice for respite in all forums.

ARCH is a program of     

Become a member

Join with other concerned advocates, providers and family caregivers who want to make a difference in the lives of the nation's children and adults with disabilities and chronic conditions, older adults, and their caregivers, and other families needing support.

Contact us

ARCH stands for Access to Respite Care and Help.


4220 NC Hwy 55, Suite 330, Durham, NC 27713

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